Your GP / Primary Care
Getting a referral, explaining autism in ten minutes, and what to do when your doctor doesn't get it.
The role of primary care
In many healthcare systems, your GP or primary care doctor is the first step to specialist care. For autism assessment, you often need a referral. Your doctor is the gatekeeper.
The problem: many doctors know little about autism in adults. They think of children who don't talk or don't make eye contact. Someone who masks well can completely escape their notice.
This means you might have to advocate for yourself. That's exhausting, but often necessary.
Preparing for the appointment
Know what you're asking for
You want a referral for autism assessment. That's concrete. You're not asking for an opinion, you're asking for a referral.
Prepare examples
Write down 3-5 concrete situations where you recognize autistic traits. Social difficulties, sensory sensitivities, trouble with change, intense interests.
Know your rights
In most countries, you have the right to request a referral to a specialist. Your GP is a gatekeeper, but they can't simply refuse without reason.
Bring someone
A partner, friend, or family member who can confirm what you're saying. Or bring your notes and read from them if that's easier.
What to say
Opening
"I think I may be autistic and I'd like a referral for an assessment."
Direct, clear, no preamble. This is what you want.
When they ask why you think so
"I recognize myself in many traits: [give your examples]. I want clarity."
You don't need to diagnose yourself. You just need to explain why you want it investigated.
If they say you don't seem autistic
"I've learned to adapt. It's called masking. Many autistic adults aren't recognized because of it."
GPs often don't see autism in adults who function well. Explain why that's misleading.
If they hesitate to refer
"I'm not asking for your opinion on whether I'm autistic. I'm asking for a referral to someone who can assess that."
A GP isn't a specialist. Their job is to refer, not to diagnose.
If they offer alternatives (counseling, mindfulness)
"I want clarity about autism first before starting other treatments."
Some treatments don't work for autistic people. First diagnosis, then treatment plan.
Problems and solutions
The doctor doesn't believe you
Ask what you need to be taken seriously. At a follow-up, bring evidence: questionnaires you've filled out (AQ-50, RAADS-R), statements from people who know you well, old school reports.
The doctor wants to try something else first
You can decline this. Say you want clarity first. If you've been dealing with issues for years, you can say you don't want another detour.
The doctor doesn't know suitable clinics
Do your own research and name specific clinics. 'I'd like to be referred to [clinic name], they do adult autism assessments.'
The doctor says wait times are too long
That's not a reason not to refer. The longer you wait to refer, the longer your total wait.
You can't get through the conversation
Write a letter. Explain everything, include your examples, and request a referral in writing. Some things are easier on paper.
Finding a different doctor
If your doctor won't cooperate and you can't get through, you might consider switching practices. That's a big step, but sometimes necessary.
Look for a doctor known for attention to mental health, or ask in autism communities for recommendations in your area.
About the short appointment
Standard GP appointments are often 10-15 minutes. That's not much for something like an autism concern. You can ask for a longer appointment when booking. Explain that it's about a referral for assessment and you need more time.
Self-referral options
Depending on your country and healthcare system, some clinics accept self-referrals. This means you can contact them directly without going through your GP first. Check with autism assessment centers in your area about their intake process.